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I had really bad POTS and dysautonimia a few years back when the weather was really hot. I was surprised when it eased up as the weather became cooler. The next year's hot weather made it worse again but I went to great lengths to keep cool and that has kept it from being so bad again.

The only problem with talking about post infectious disease states is it assumes the infection is over and we do not know if that is the case, for instance herpes viruses persist in the body. I suspect a lot of medics do not like the name longcovid as it implies the infection is still going on...

The guy who was head of the benefits agency then got a chair at Cardiff University (his name flashes into my mind then disappears, sorry) said that a disease is something that is physically wrong in the body but illness is a behaviour which might mean you have a disease or that you just think...

I think that CBT is effective at changing thoughts and behaviours if the changes are beneficial to the patient. My mother was always a bit obsessive but after my father died she found herself unable to get to bed because she kept checking the doors were locked. We discussed it and came up with...

Many microbes easily hide in the body and evade the immune system. Detecting antibodies in the blood is different from finding organisms. Basic biological processes are highly conserved so it is not necessary to have an animal model of disease to help ME. They only get away with a lot of their...

In the late 80s I was a member of a local ME group. One woman there had developed ME after she had gone down 2 viruses at once. I think it was meningitis and something else. Having 2 infections to fight was definitely seen as being a risk factor for ME then according to doctors.

The device shows biomedical anomalies so it would be useful important evidence to the people who decide who gets disability benefits. A lot of their energy goes into deciding who is "genuinely ill" from those who are just freeloaders. I have heard of people getting money after a positive result...

This is one of those papers that typifies how some research is only needed because of issues which only exist as a result of serious flaws in the basic premise. One of the core tenets of FND is that it is a single disease caused by emotional problems disturbing brain function which changes...

In the early 80s my husband was a microbiologist and there was a renewed interest in enteroviral research in the meetings and things he attended. It had gone on for a few years and a test was developed. He even wrote a program on his spectrum which he took to work once a week to analyze the...

I think people with ME develop POTS because ME causes damage to parts of the brain resulting in general dysautonomia. All ME patients have this even if it is not severe enough to be called POTS. Not being able to stand for long without feeling ill and having temperature problems is almost...

I assume goodwill among GPs and that they want to help them get better. They have a patient show up saying they are tired, just not feeling well or with weird symptoms. Once all the common things are ruled out and the patient is still the same the doctor will then pass them on to MUS, FND, or...

Going back many years before CFS, there was a growing feeling that all the tests for ME were negative because they were all done at rest. I remember one doctor found that qeeg (?) results were abnormal only if they were taken standing up instead of lying down. The differences in results could...

Glad to know that :banghead::banghead::banghead:

Years ago, an official report on CFS (ME/CFS it would be now) that paved the way to the PACE trial etc said that it was a new type of disease in that it was not a psychological disease or a physical disease but occupied a strange position in between. At the time I felt that such an...

2012? That worked well then. Something I have noticed in many aspects of life, we do not need new rules we just need proper application of the existing ones. Good find.

That sounds like CFS is being used to mean, well, having chronic fatigue rather than the specific disease that was meant to be identical to ME. When patient groups complained that this would happen they were assured that they were being just silly and of course no professionals could mistake the...

I am shocked speechless. Perforated appendicitis is no joke. My Mother in Law died at age 75 due to adhesions on the bowel caused by a perforated appendix operation when she was 7 causing torsion and tissue death. It tells you the quality of the doctor when they publish results that are said to...

So, basically, lots of information but nothing that tells you what you want to know :) I find weather forecasts to be much the same! Thank you.