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Anecdotally, regarding raising private funds. When I've talked to people with money, they would rather fund established research on what they perceive as a "legitimate" disease. Think cancer, Parkinson's and AIDS, certainly not ME/CFS. The idea of throwing their money at what they perceive as a...

c|net and Motherboard cover home-made face masks and face coverings. How to make a face mask or covering at home: Find patterns, cloth, premade masks What's the difference between a face mask and a face covering? Can you buy premade face masks? How do you donate them? We answer these questions...

This is my backup hand sanitizer, in case I run out of isopropyl. :dead:

Just a general acknowledgement there are a lot of treatment scam sites being created daily. New York Attorney General asks domain registrars to crack down on coronavirus scam sites https://securityaffairs.co/wordpress/100321/laws-and-regulations/fighting-coronavirus-scam-sites.html My evil...

People Are Trying to Make DIY Ventilators to Meet Coronavirus Demand As countries face shortages of important medical equipment during the COVID-19 pandemic, makers are desperately trying to fill the gaps with open source designs...

Very good point. That is an incredibly cheap watch. :thumbup: I'm interested in how the new Apple Watch features might enable more ME research in the US. As I understand it, the watch will be FDA approved, and Apple already has a research app to collect the data to share with academic studies.

9to5Mac is claiming that Apple iOS 14 code indicates plans to add blood oxygen level detection to the Apple Watch. Typically, Apple releases watch updates in September or October. Apple Watch blood oxygen detection feature found in iOS 14 code snippet...

Ars Technica has a decent guide with answers to many common coronavirus questions. They say it will be updated regularly. It is US-centric, however. Don’t Panic: The comprehensive Ars Technica guide to the coronavirus...

Stanford University has canceled in-person classes for at least the next two weeks, as well as large group events. https://healthalerts.stanford.edu/

Fauci discussed this on CNN last night. Basically saying the 3.4% is strictly just a pure calculation: deaths/known cases. Clearly, the true denominator should be larger, as there are many undiagnosed cases of COVID-19. So the actual death rate is considerably lower than the purely calculated...

A few school shutdowns have started in California and Washington state already.

All this discussion reminds me of a quote from Dr. Unger of the CDC:

Yes, since first learning to write as a child. Missing letters, omitted words, pen strokes in the wrong direction, etc. Difficulty gripping a pencil/pen, painful writing cramps. It's not such a problem these days with keyboards and touchscreens. Still, words get omitted and letters reversed...

Oh look, one of the images is of shopping. It's the return of Bath's shopping therapy. :eek:

For comparison, a recent estimate based on medical claims data and machine learning gives a predicted prevalence of .857% in the US. Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning...

I suspect some of the younger kids get misdiagnosed with ADHD. Everyone knows about ADHD... few are looking for ME/CFS. As David S. Bell writes:

Komaroff is longtime Section Editor for UpToDate's Myalgic Encephalomyelitis/Chronic Fatigue Syndrome section, which recommended GET until late 2018. Most positive references to GET and PACE were removed in late 2018. Below is a screenshot from UpToDate in April 2018...

The CDC calls ME/CFS "America's Hidden Health Crisis". To steal a line from Thunberg, "we’re in a crisis that’s never been treated as a crisis".

The CDC website was also essential in my successful discussions with Kaiser Permanente. However, I made no progress when directly asking the CDC to comment on the PACE evidence for GET. They simply would not comment on PACE, period. Head in the sand pretending PACE never happened. The CDC...

Study estimating 1.7-3.38 million in US, with a predicted prevalence of 2.8 million (857/100,000). https://www.s4me.info/threads/estimating-prevalence-demographics-and-costs-of-me-cfs-using-large-scale-medical-claims-data-and-machine-learning-2018-valdez-proskauer-et-al.7279/ This prevalence...