Recent Activity
Activity stream for all registered members at Science for ME.
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FMMM1 liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:33 PM -
FMMM1 liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The monitoring should be possible, but what would you do with it? For asthma and diabetes we have well documented treatments that...
Jun 2, 2024 at 8:33 PM -
FMMM1 liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Detailed recording ought to be useful for research but the issue here is how people should be assessed in routine practice. Until we...
Jun 2, 2024 at 8:31 PM -
Trish replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 2, 2024 at 8:31 PM -
Hutan liked Binkie4's post in the thread USA: Mount Sinai PACS clinic and Dr Putrino.
Fantastic! This research team means business. I am so disappointed that I visited New York ( to see my son) last November, contacted...
Jun 2, 2024 at 8:23 PM -
Hutan liked SNT Gatchaman's post in the thread USA: Mount Sinai PACS clinic and Dr Putrino.
Discussing their unpublished results in purified IgG transfer from acute Covid and long Covid patients to mice — "So we're very, very...
Jun 2, 2024 at 8:22 PM -
Trish liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:19 PM -
Trish liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 8:19 PM -
rvallee replied to the thread News from Canada.
Sometimes questions just answer themselves: Mental health services aren't an option in most of those cases. They could be scarce, they...
Jun 2, 2024 at 8:13 PM -
Jonathan Edwards replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 8:05 PM -
Yann04 liked ahimsa's post in the thread USA: News from #MEAction.
News from #MEAction, from a post on Bluesky by Jaime Seltzer: (line breaks added) "#MEAction’s narrative activity study with Mayo...
Jun 2, 2024 at 8:05 PM -
Yann04 liked rvallee's post in the thread USA: News from #MEAction.
There are two versions of the survey. It can be cut short after a few questions, or continued for a total of 40-60 minutes. But it's...
Jun 2, 2024 at 8:05 PM -
JemPD liked Trish's post in the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 8:04 PM -
Yann04 liked Trish's post in the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 8:04 PM
