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MrMagoo liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I think that's rather different to annual reviews, which are by definition routine. They're not designed to manage a change in...

Peter Trewhitt liked MrMagoo's post in the thread UK: University College London hospitals (NHS).

Peter Trewhitt liked rvallee's post in the thread Functional dyspepsia and gastroparesis in tertiary care are interchangeable syndromes with common clinical and pathological features, 2021, Pasricha.

Oh, it doesn't imply it, it means exactly that. Although there are definitions of functional that mean something closer to what it...

bobbler liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Yes, I was thinking it could be done by a practice nurse, like the diabetes, asthma etc

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to...

Peter Trewhitt liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I think that's rather different to annual reviews, which are by definition routine. They're not designed to manage a change in...

MrMagoo replied to the thread : TV casting call for people living with ME/CFS.

But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...

Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Not necessarily PROM specifically - as those just measure delivery of something but something simple and more appropriate annually that...

Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I am finding the idea of discussing the pros and cons /potential catches (my biggest concern is understanding the power base behind GP...

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Yes, I was thinking it could be done by a practice nurse, like the diabetes, asthma etc

Peter Trewhitt liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care...

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Maybe there should be an annual review PROMS

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Care and support plans...

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Once a year review in primary care is the NICE recommendation...

Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

If those are trained well, and not from some guideline eg put together by Clare Gerada, then it gets around clinics being able to claim...