Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Yes it would! I would hope the producers are aware of the guidance, but then again I can think of some ME clinics/physios who would...
Jun 12, 2024 at 3:29 PM -
bobbler liked Mij's post in the thread : TV casting call for people living with ME/CFS.
I was able to run during the earlier years of M.E and continued to do so even when I experienced severe PEM and recovered after 3-4...
Jun 12, 2024 at 3:28 PM -
bobbler liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
It'd be nice to have some!
Jun 12, 2024 at 3:28 PM -
bobbler liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 3:28 PM -
bobbler liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
All of the above. I think they'll have no trouble at all finding someone. Someone who is either very mildly affected (eg somewhat...
Jun 12, 2024 at 3:26 PM -
rvallee liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 3:25 PM -
Robert 1973 replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Yes, it seems to have been amended for the better: I don’t have a copy of the original article. At the end of the article it now...
Jun 12, 2024 at 3:25 PM -
bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
When I was mild I started jogging again. I also started cycling too. Never as far as I used to, never as regularly as I used to, it was...
Jun 12, 2024 at 3:24 PM -
Solstice replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 3:22 PM -
bobbler liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...
Jun 12, 2024 at 3:20 PM -
Trish liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
It'd be nice to have some!
Jun 12, 2024 at 3:19 PM -
Evergreen replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
That's very helpful.
Jun 12, 2024 at 3:17 PM -
Evergreen liked Kitty's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
In my experience, the big ones are equally mediocre and uninspired!* But they work reliably, and in some ways there's not a lot to...
Jun 12, 2024 at 3:17 PM -
Evergreen replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
Yep I should be able to do that.
Jun 12, 2024 at 3:16 PM
