Recent Activity
Activity stream for all registered members at Science for ME.
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FMMM1 liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...
Jun 11, 2024 at 9:42 PM -
Joan Crawford replied to the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 11, 2024 at 9:41 PM -
Yann04 liked SNT Gatchaman's post in the thread NIH study - where to start?.
#noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...
Jun 11, 2024 at 9:40 PM -
Amw66 liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Definitely. It should be the only monitoring that counts. Particularly until we ever get past the phase where treatments and measures...
Jun 11, 2024 at 9:39 PM -
Yann04 replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 11, 2024 at 9:39 PM -
Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Definitely. It should be the only monitoring that counts. Particularly until we ever get past the phase where treatments and measures...
Jun 11, 2024 at 9:37 PM -
Peter Trewhitt liked bobbler's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.
well they can spot vulnerable all right. And being in their hands to pass and even be able to get on with the rest of your career even...
Jun 11, 2024 at 9:36 PM -
bobbler liked Mij's post in the thread ME/CFS services in the United Kingdom.
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Jun 11, 2024 at 9:34 PM -
bobbler liked Yann04's post in the thread NIH study - where to start?.
PEM is mentioned 3 times in the study, as opposed to 26 times for “effort preference”. There no mention of PEM anywhere in their...
Jun 11, 2024 at 9:33 PM -
Hutan liked SNT Gatchaman's post in the thread NIH study - where to start?.
#noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...
Jun 11, 2024 at 9:33 PM -
Trish liked Mij's post in the thread ME/CFS services in the United Kingdom.
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Jun 11, 2024 at 9:33 PM -
forestglip liked SNT Gatchaman's post in the thread NIH study - where to start?.
#noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...
Jun 11, 2024 at 9:32 PM -
Wyva liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
What then do they think are the problems? Society's belief that objectively measurable disorders are more real and worthy than other...
Jun 11, 2024 at 9:32 PM
