Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
This is my favourite part, from the art therapy abstract: "The art therapy protocol consists of 6 sessions with the following themes:...
Jun 12, 2024 at 7:07 PM -
Hutan liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
Some conference abstracts from The 30th National Scientific Assembly of the Hungarian Psychological Society from 2023 (book of abstracts...
Jun 12, 2024 at 7:03 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
It may be difficult because, as Trish says, there is so much muddled thinking everywhere. But the first thing I would say is that 'the...
Jun 12, 2024 at 7:01 PM -
Lindberg liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Hmmm. I know most of this community is of the opinion that the diagnoses such as MCAS and EDSh are not legitimate. But I’m wondering...
Jun 12, 2024 at 7:00 PM -
Peter Trewhitt liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The times that I've used the services of private specialists, it hasn't been about managing the core features of ME. I've needed help...
Jun 12, 2024 at 6:59 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Yeah but nobody knows what. And if you seek hard enough you will find all sorts of made up stuff. At some point everyone involved has to...
Jun 12, 2024 at 6:59 PM -
Peter Trewhitt liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Hmmm. I know most of this community is of the opinion that the diagnoses such as MCAS and EDSh are not legitimate. But I’m wondering...
Jun 12, 2024 at 6:59 PM -
Lindberg liked mango's post in the thread Sweden: ME clinic and Masano Health digital rehab for ME/CFS.
Great letter/opinion piece published in a local online newspaper today, written by @MittEremltage :thumbup: Insändare: Rädda regionens...
Jun 12, 2024 at 6:58 PM -
Peter Trewhitt liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Admitting they don't understand M.E or that they haven't figured it out yet is not the same as dismissing the patient. I can respect that.
Jun 12, 2024 at 6:57 PM -
Peter Trewhitt liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The guy that first diagnosed me told me there was nothing he could to help me. Which is devastating but also absolutely fair imo. I...
Jun 12, 2024 at 6:57 PM -
Peter Trewhitt liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
'The only problem with that is that it is not fair to ask people to ask for help when nobody knows what would help. They just end up...
Jun 12, 2024 at 6:57 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 12, 2024 at 6:56 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think that is fair. So I guess that my conclusion that there is an urgent need for some sort of consensus amongst the medical...
Jun 12, 2024 at 6:56 PM -
Peter Trewhitt liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Out of curiosity what’s the issue with EDS. Isn’t it a group of genetically testable diseases — which would make the diagnosis...
Jun 12, 2024 at 6:55 PM -
Peter Trewhitt liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A couple of days ago on X there was a patient dx with M.E who posted information about CCI/AAI, MCAS, EDS that received many replies...
Jun 12, 2024 at 6:55 PM
