Recent Activity
Activity stream for all registered members at Science for ME.
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JellyBabyKid liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 2:46 PM -
rvallee liked NelliePledge's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
Tripe
Jun 12, 2024 at 2:46 PM -
JellyBabyKid liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...
Jun 12, 2024 at 2:43 PM -
JellyBabyKid liked Sean's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual...
Jun 12, 2024 at 2:42 PM -
Solstice liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 2:37 PM -
Hutan liked Solstice's post in the thread News from Austria and Switzerland.
If we're pitching theories, I think it's just lord Chtulhu working in nefarious ways.
Jun 12, 2024 at 2:37 PM -
tornandfrayed liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of...
Jun 12, 2024 at 2:37 PM -
Solstice liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 2:36 PM -
Solstice liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients....
Jun 12, 2024 at 2:36 PM -
Trish liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
This is my favourite part, from the art therapy abstract: "The art therapy protocol consists of 6 sessions with the following themes:...
Jun 12, 2024 at 2:35 PM -
Trish liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
The article does a really good job of presenting how an ordinary family's life can be overturned by all of this, how intransigent...
Jun 12, 2024 at 2:34 PM -
geminiqry liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 2:34 PM -
JellyBabyKid liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 2:32 PM
