Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Just gonne provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]
Jun 13, 2024 at 11:11 AM
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NelliePledge liked SNT Gatchaman's post in the thread Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up FDG-PET study, 2024, Horowitz+.
Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up 18FFDG-PET study...
Jun 13, 2024 at 11:10 AM -
John Mac liked LJord's post in the thread Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al.
I attended an open house yesterday. This device is amazing. I’m also impressed at the attention to detail of the people developing...
Jun 13, 2024 at 11:06 AM -
Yann04 attached a file to the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Just gonne provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]
Jun 13, 2024 at 11:06 AM
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NelliePledge liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 13, 2024 at 11:05 AM -
Robert 1973 liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Here's the latest correspondence with Cochrane. CEO Catherine Spencer wrote to me yesterday and I replied copying in COPE and...
Jun 13, 2024 at 11:05 AM -
FMMM1 liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...
Jun 13, 2024 at 11:04 AM -
SNT Gatchaman liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...
Jun 13, 2024 at 11:04 AM -
NelliePledge liked Andy's post in the thread What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines 2024 Fox et al.
Abstract Background An integral aspect of patient engagement in research, also known as patient and public involvement, is...
Jun 13, 2024 at 11:04 AM -
SNT Gatchaman liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...
Jun 13, 2024 at 11:03 AM
