Recent Activity
Activity stream for all registered members at Science for ME.
-
Sean liked Mij's post in the thread Federal Government, Clinicians, Employers, and Others Should Adopt New Definition for LC to Aid in Consistent Diagnosis, Documentation, and Treatment.
News Release | June 11, 2024 WASHINGTON — A new National Academies of Sciences, Engineering, and Medicine report says the federal...
Jun 13, 2024 at 2:28 AM -
Sean liked rvallee's post in the thread National Academies: New Report Reviews Evidence on Long COVID Diagnosis, Risk, Symptoms, and Functional Impact for Patients 2024.
I'm seeing a few mentions of how there's now an "official definition" of LC, but aside from a few details, this is basically the same...
Jun 13, 2024 at 2:28 AM -
forestglip liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 2:28 AM -
Sean liked mango's post in the thread Sweden: ME clinic and Masano Health digital rehab for ME/CFS.
Another great opinion piece! Fantastic effort, @MittEremltage :thumbup: Insändare: Stryk ME-mottagningen från listan på besparingar...
Jun 13, 2024 at 2:28 AM -
Sean liked mango's post in the thread Sweden: ME clinic and Masano Health digital rehab for ME/CFS.
Great letter/opinion piece published in a local online newspaper today, written by @MittEremltage :thumbup: Insändare: Rädda regionens...
Jun 13, 2024 at 2:28 AM -
Sean replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 2:27 AM -
alex3619 liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 2:24 AM -
alex3619 liked Sean's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
Yep. Every time I have tried to explain PEM to somebody in the health system their eyes glaze over, and it is abundantly clear they...
Jun 13, 2024 at 2:23 AM -
Possibly James May liked Jaybee00's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
https://www.medpagetoday.com/meetingcoverage/eular/110610 CAR-T Treatment Continues to Astonish in Rheumatologic Diseases
Jun 13, 2024 at 2:23 AM -
Sean liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 2:14 AM
-
Sean liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 2:12 AM -
Sean liked Nightsong's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
Problems with HADS have been discussed on S4ME before; I did notice, though, that they're using a different scale for children: This...
Jun 13, 2024 at 2:12 AM -
MrMagoo replied to the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 2:12 AM -
Sean liked Yann04's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
On twitter, someone pointed out the Depression and Anxiety questionnaire used would give false positives based on being sick. Quote:...
Jun 13, 2024 at 2:12 AM
