Recent Activity
Activity stream for all registered members at Science for ME.
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forestglip liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
There is no excuse for such ridicule. But I can see why doctors would get fed up with patients claiming to have MTHFR mutations and...
Jun 12, 2024 at 11:39 AM -
forestglip liked Andy's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
Abstract The COgnitive behavioural therapy versus standardised medical care for adults with Dissociative non-Epileptic Seizures...
Jun 12, 2024 at 11:38 AM -
forestglip liked Andy's post in the thread Closed UK: DecodeME updates, was recruitment thread..
Job description Summary: Job Title: Communications and Engagement Officer Reports to: Research Manager Salary: Up to £30,000 FTE...
Jun 12, 2024 at 11:37 AM -
bobbler liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 11:36 AM -
bobbler liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 11:35 AM -
forestglip liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 11:35 AM -
Arisoned replied to the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 11:34 AM -
SNT Gatchaman liked Andy's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
Abstract The COgnitive behavioural therapy versus standardised medical care for adults with Dissociative non-Epileptic Seizures...
Jun 12, 2024 at 11:34 AM -
bobbler liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I don't know if it's a smokescreen because I a priori don't see how it would matter who administered the EEfRT or who conducted most of...
Jun 12, 2024 at 11:33 AM -
forestglip liked alfons2235's post in the thread Combined Metabolic Activators Accelerates Recovery in Mild-to-Moderate COVID-19, Altay et al, 28 June 2021.
RC controlled studies with administration of NAC are always avoided because no patent profit will be acquired. But a lot of earlier...
Jun 12, 2024 at 11:33 AM -
bobbler liked EndME's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I don't know if it's a smokescreen because I a priori don't see how it would matter who administered the EEfRT or who conducted most of...
Jun 12, 2024 at 11:32 AM -
Yann04 liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 11:32 AM
