Recent Activity
Activity stream for all registered members at Science for ME.
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Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
It certainly is interesting. Do you have POTS? The tachycardia in POTS is driven by epinephrine.
Jun 2, 2024 at 10:27 PM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
I wouldn't rule it out. I just don't think we know enough as to why saline is beneficial. I mean it directly improves the functioning...
Jun 2, 2024 at 10:27 PM -
Peter Trewhitt liked forestglip's post in the thread READ FIRST: Welcome to the MEpedia subforum!.
Ok, I made something: https://me.comprehensibleinputwiki.com/index.php?start_date=2024-06-01&end_date=2024-06-02 I made it so it will...
Jun 2, 2024 at 10:27 PM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah they are aware of this. I spoke to them about it several years ago. At the end of the day the Rituximab trial failed to show enough...
Jun 2, 2024 at 10:27 PM -
RedFox liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Absolutely, that's why it needs renaming and possibly reframing. But it's a thing, and acknowledgement of it would be useful—albeit...
Jun 2, 2024 at 10:27 PM -
RedFox liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
spot on. ALthough I'd be careful with the time theft one. I can see the behaviourists - who spread rumours about all sorts of people...
Jun 2, 2024 at 10:27 PM -
Missense liked Eddie's post in the thread Open Medicine Foundation (OMF).
I would really like more work to be done on orthostatic issues. For me this is one area where I think progress can be made with just a...
Jun 2, 2024 at 10:27 PM -
Peter Trewhitt liked Yann04's post in the thread Open Medicine Foundation (OMF).
I would be very happy to have health insurance reimbursed Gazpacho prescriptions. :)
Jun 2, 2024 at 10:26 PM -
Missense liked Milo's post in the thread Open Medicine Foundation (OMF).
This may be a bit off topic but if you (or collaborators) are looking for research leads, I know of many, too many pwME that have a...
Jun 2, 2024 at 10:26 PM -
Peter Trewhitt liked MelbME's post in the thread Open Medicine Foundation (OMF).
Not convincing data in ME yet we hope to provide the answers to this question by testing sham, saline, hypotonic saline and hypertonic...
Jun 2, 2024 at 10:26 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
Hi @MelbME. Is saline beneficial? Standard physiology would suggest that the chances of saline infusions being more use than drinking a...
Jun 2, 2024 at 10:25 PM -
Missense liked MSEsperanza's post in the thread Open Medicine Foundation (OMF).
As improvement occurred only several months after infusions were given I think it's unlikely that any outcomes measured an actual effect...
Jun 2, 2024 at 10:25 PM -
Missense liked Turtle's post in the thread Open Medicine Foundation (OMF).
Welcome and great to have you joining us as a researcher. The Norwegians should be aware of, at least the possibility that the Saline...
Jun 2, 2024 at 10:25 PM -
Peter Trewhitt liked NelliePledge's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
In my opinion Cort always puts a positive gloss on everything he writes about.
Jun 2, 2024 at 10:25 PM -
Peter Trewhitt liked SNT Gatchaman's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
Two things caught my eye — And
Jun 2, 2024 at 10:25 PM
