Recent Activity
Activity stream for all registered members at Science for ME.
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MrMagoo replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Maybe there should be an annual review PROMS
Jun 11, 2024 at 11:23 PM -
Lou B Lou liked Mij's post in the thread ME/CFS services in the United Kingdom.
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Jun 11, 2024 at 11:23 PM -
bobbler liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Care and support plans...
Jun 11, 2024 at 11:21 PM
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alktipping liked Yann04's post in the thread NIH study - where to start?.
@cassava7 I think this piece is quite good at summarising the potential problems with the study, while staying neutral in tone, and...
Jun 11, 2024 at 11:20 PM -
alktipping liked rvallee's post in the thread NIH study - where to start?.
Very damning when presented all side-by-side. This really was mainly a biopsychosocial paper, having chosen to make the irrelevant...
Jun 11, 2024 at 11:19 PM -
Lou B Lou liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I really, really hope you ge a polite apology. I’m sure they think they’re being brilliantly inclusive. I wonder whether they would be...
Jun 11, 2024 at 11:19 PM -
forestglip liked Michelle's post in the thread Adam Mastroianni - blogs on research methodology.
You may remember Adam Mastroianni from such threads as this (about why peer review is crap) or this (about how people believe things...
Jun 11, 2024 at 11:19 PM -
bobbler liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Once a year review in primary care is the NICE recommendation...
Jun 11, 2024 at 11:19 PM -
forestglip liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 11, 2024 at 11:18 PM -
alktipping liked forestglip's post in the thread NIH study - where to start?.
Did they completely ignore PEM? From what I recall of the symposium - though I don't have the energy to seek out where in the video they...
Jun 11, 2024 at 11:17 PM -
forestglip liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I really, really hope you ge a polite apology. I’m sure they think they’re being brilliantly inclusive. I wonder whether they would be...
Jun 11, 2024 at 11:17 PM -
alktipping liked forestglip's post in the thread NIH study - where to start?.
Yeah, looking at the actual study, I think this is the extent of testing performed one or more days post-CPET: And no meaningful...
Jun 11, 2024 at 11:17 PM -
forestglip liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 11, 2024 at 11:17 PM -
forestglip liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 11, 2024 at 11:17 PM
