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Eddie liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.

FMMM1 liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

I agree. My concern is that the reference to untested treatments will make it only too easy for health professionals to say to...

FMMM1 liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...

bobbler liked EndME's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

It's explained somewhere in the study set-up of the slightly modified EEfRT they are using (not by counting together the trial durations...

bobbler liked JoClaire's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

Where did we find out the Walitt test was 15 minutes? (Edited this part: I am looking at data (3a). Totaling choice_time and...

Trish liked Andy's post in the thread Closed UK: DecodeME updates, was recruitment thread..

Job description Summary: Job Title: Communications and Engagement Officer Reports to: Research Manager Salary: Up to £30,000 FTE...

Peter Trewhitt liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

Does it in some way avoid the ‘correlation issue’ of what is causing what given disability existed before the task —> correlation with...

bobbler liked JoClaire's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

I think this could strengthen your argument if positioned in such a way. If PHTC shows effort preference, which (ahem) is “avoiding...

Eleanor replied to the thread : TV casting call for people living with ME/CFS.

This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...

bobbler replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

Does it in some way avoid the ‘correlation issue’ of what is causing what given disability existed before the task —> correlation with...

Trish liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.

Some conference abstracts from The 30th National Scientific Assembly of the Hungarian Psychological Society from 2023 (book of abstracts...

Eleanor liked bobbler's post in the thread : TV casting call for people living with ME/CFS.

Is it worth getting in touch with the presenter Richsrd Whitehead too just offering more info and being gently enlightening. He’s a...

Wyva replied to the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.

This is my favourite part, from the art therapy abstract: "The art therapy protocol consists of 6 sessions with the following themes:...