Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Yes, it seems to have been amended for the better: Unfortunately, I don’t have a copy of the original article to compare so I’m...
Jun 12, 2024 at 3:43 PM -
Kitty liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
The article does a really good job of presenting how an ordinary family's life can be overturned by all of this, how intransigent...
Jun 12, 2024 at 3:43 PM -
Kitty liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
or maybe she's just getting better.
Jun 12, 2024 at 3:43 PM -
Kitty liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...
Jun 12, 2024 at 3:42 PM -
Wyva liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 3:42 PM -
Kitty liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I agree. My concern is that the reference to untested treatments will make it only too easy for health professionals to say to...
Jun 12, 2024 at 3:42 PM -
Kitty liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...
Jun 12, 2024 at 3:42 PM -
Kitty liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...
Jun 12, 2024 at 3:42 PM -
Kitty liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 3:41 PM -
Wyva liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 3:40 PM -
Wyva liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 3:40 PM -
Kitty liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
That's very helpful.
Jun 12, 2024 at 3:39 PM -
Kitty liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Yep I should be able to do that.
Jun 12, 2024 at 3:39 PM