Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 1:24 AM -
Michelle liked Eddie's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic...
Jun 13, 2024 at 1:18 AM -
JemPD liked Dx Revision Watch's post in the thread SNOMED CT implementation in primary care UK.
May be of interest where GP practices using SystmOne for electronic medical records are still coding using the now retired Read CTv3...
Jun 13, 2024 at 1:17 AM
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LJord liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 1:16 AM -
JemPD liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 1:16 AM -
NelliePledge liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 1:15 AM -
Laurie P liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 1:12 AM -
Laurie P liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 1:12 AM -
JemPD liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 1:10 AM -
Lou B Lou liked Nightsong's post in the thread Esther Crawley.
I edited my post just about a minute before you replied, Trish, but I meant insofar as she's able to directly affect the lives of...
Jun 13, 2024 at 12:59 AM -
Lou B Lou liked Trish's post in the thread Esther Crawley.
Not necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For...
Jun 13, 2024 at 12:59 AM -
Lou B Lou liked Trish's post in the thread Esther Crawley.
I am not sure what it's rignt to say about this. It seems to me it's very likely that an early retirement may be on personal grounds...
Jun 13, 2024 at 12:58 AM -
Lou B Lou liked dave30th's post in the thread Esther Crawley.
really? If she qualified in 1991? I assumed mid-50s. Might have to correct my post although I said "presumably."
Jun 13, 2024 at 12:58 AM -
Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 13, 2024 at 12:56 AM -
Lou B Lou liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 12:55 AM
