Recent Activity

Activity stream for all registered members at Science for ME.

  1. FMMM1 liked Hutan's post in the thread USA: NIH National Institutes of Health news - next event May 28 2024.

    They say they did. And Lucinda Bateman seems to be involved in, at least, the 'structured pacing' trial. I'm not sure what 'structured...

    May 9, 2024 at 4:33 PM
  2. Robert 1973 liked Dolphin's post in the thread A general thread on the PACE trial!.

    The FINE Trial wasn’t published till 2010: https://www.bmj.com/content/340/bmj.c1777

    May 9, 2024 at 4:23 PM
  3. RedFox liked rvallee's post in the thread A general thread on the PACE trial!.

    But in real life it's more complicated than that. It's almost impossible to work this out in criteria, but many of us, like me, did not...

    May 9, 2024 at 4:16 PM
  4. RedFox liked DigitalDrifter's post in the thread A general thread on the PACE trial!.

    See: https://www.s4me.info/threads/who-hijacked-me.28199/ At the moment patients who experience damage from exercise don't have an...

    May 9, 2024 at 4:15 PM
  5. RedFox liked Evergreen's post in the thread A general thread on the PACE trial!.

    Interesting how AfME interpreted that table, especially the fifth bullet point: [ATTACH] [ATTACH] It looks, to me, like (some at) AfME...

    upload_2024-5-5_14-51-35.png upload_2024-5-5_14-53-41.png upload_2024-5-5_14-57-46.png May 9, 2024 at 4:15 PM
  6. RaviHVJ liked RedFox's post in the thread Long Covid Moonshot Initiative.

    I sent a letter to my Senators Casey and Fetterman.

    May 9, 2024 at 4:15 PM
  7. RedFox liked Lou B Lou's post in the thread A general thread on the PACE trial!.

    The CEO of AFME at the time (Chris Clarke) sold PACE to the members as a study on pacing. I'm sure AFME did one of their endless polls,...

    May 9, 2024 at 4:14 PM
  8. RedFox liked Jonathan Edwards's post in the thread A general thread on the PACE trial!.

    I am sure that is right. Tom seems to be the person who saw the scientific problems long before anyone else. My thought was that this...

    May 9, 2024 at 4:13 PM
  9. RedFox liked Jonathan Edwards's post in the thread A general thread on the PACE trial!.

    The PACE trial claimed to be on chronic fatigue syndrome and their definition did not include PEM. That is scientifically legitimate....

    May 9, 2024 at 4:13 PM
  10. RedFox liked Sean's post in the thread A general thread on the PACE trial!.

    The PACE authors and their supporters (including Wessely) were openly saying that they changed the outcome analysis protocol post-hoc...

    May 9, 2024 at 4:11 PM
  11. RedFox liked Evergreen's post in the thread A general thread on the PACE trial!.

    The working group that produced the 2002 report to the Chief Medical Officer included Shepherd, Pheby as well as Chalder, Chris Clark...

    May 9, 2024 at 4:09 PM
  12. RedFox liked rvallee's post in the thread A general thread on the PACE trial!.

    Maybe I'm misremembering, but I think that the 2007 guideline actually mentioned an upcoming trial that would prove it correct, likely...

    May 9, 2024 at 4:08 PM
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