Recent Activity
Activity stream for all registered members at Science for ME.
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Wyva liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...
Jun 13, 2024 at 10:17 AM -
Peter Trewhitt liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...
Jun 13, 2024 at 10:17 AM -
Wyva liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 10:17 AM -
Wyva liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 13, 2024 at 10:16 AM -
FMMM1 liked Jonathan Edwards's post in the thread Esther Crawley.
If she qualified in 1991 should would be expected to be 58 but if for some reason she completed her medical training late, maybe having...
Jun 13, 2024 at 10:16 AM -
FMMM1 liked Trish's post in the thread Esther Crawley.
Not necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For...
Jun 13, 2024 at 10:15 AM -
Kitty liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 10:15 AM -
FMMM1 replied to the thread Esther Crawley.
Yea - 1991 --- aged 24 (ish) would be DOB 1967 - 57ish. Of course some people enter medicine a bit later e.g. it was Jonathan's 2nd...
Jun 13, 2024 at 10:15 AM -
Kitty liked ME/CFS Skeptic's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Great to hear it is ongoing. Thanks for working on this.
Jun 13, 2024 at 10:14 AM -
Wyva liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 13, 2024 at 10:14 AM -
Peter Trewhitt liked Robert 1973's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
This is Jeanette Burmeister’s summary of part 2 of her blog: https://threadreaderapp.com/thread/1800987624619782625.html @dave30th Are...
Jun 13, 2024 at 10:14 AM -
Peter Trewhitt liked MSEsperanza's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Thank you to everyone working on dissecting the study. In skimming-mode only and most is way beyond me anyway but stumbled across a...
Jun 13, 2024 at 10:14 AM -
Wyva liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 10:14 AM -
Peter Trewhitt liked wingate's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
I've only just gotten through the intro of this episode but when he jokingly introduced Oonagh as an "anti-recovery activist" I lol....
Jun 13, 2024 at 10:13 AM -
Wyva liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 13, 2024 at 10:13 AM
