Recent Activity
Activity stream for all registered members at Science for ME.
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Missense liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Dunno, but I reckon the cross-country sitting down would be the best sport to train for.
Jun 13, 2024 at 10:43 AM -
Missense liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Yes it would! I would hope the producers are aware of the guidance, but then again I can think of some ME clinics/physios who would...
Jun 13, 2024 at 10:43 AM -
Missense liked Mij's post in the thread : TV casting call for people living with ME/CFS.
I was able to run during the earlier years of M.E and continued to do so even when I experienced severe PEM and recovered after 3-4...
Jun 13, 2024 at 10:43 AM -
Trish liked FMMM1's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
When I looked at these graphs I thought --- basically there's no difference between the two groups -- just the sort of "noise" you'd...
Jun 13, 2024 at 10:43 AM -
Ken Turnbull replied to the thread Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al.
Of no scientific note: the company has changed name to "Lumia". The press release doesn't say why.
Jun 13, 2024 at 10:42 AM -
SNT Gatchaman liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...
Jun 13, 2024 at 10:42 AM -
Trish liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT...
Jun 13, 2024 at 10:42 AM -
Peter Trewhitt liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...
Jun 13, 2024 at 10:42 AM -
Peter Trewhitt liked Andy's post in the thread Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed [PPI]... 2024 Engelaar et al.
Full title: Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient...
Jun 13, 2024 at 10:42 AM -
Missense liked Hutan's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
Thanks @Ravn, the podcast sounds good. I'll have to check it out. I thought this poem from the poetry-music link described PEM so...
Jun 13, 2024 at 10:42 AM -
bobbler liked FMMM1's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
When I looked at these graphs I thought --- basically there's no difference between the two groups -- just the sort of "noise" you'd...
Jun 13, 2024 at 10:41 AM -
Peter Trewhitt liked Andy's post in the thread What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines 2024 Fox et al.
Abstract Background An integral aspect of patient engagement in research, also known as patient and public involvement, is...
Jun 13, 2024 at 10:41 AM
