Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked Kitty's post in the thread Loss of smell and taste.
Both of mine must be maddeningly over-enthusiastic then. I spent years reporting a really strong smell of gas that I picked up every...
Jun 1, 2024 at 8:26 PM -
Dolphin replied to the thread Sex and disease severity-based analysis of steroid hormones in ME/CFS, 2023, Westermeier et al.
ME Research UK Francisco Westermeier and colleagues have recently published the results of a study investigating steroid hormone levels...
Jun 1, 2024 at 8:25 PM -
Trish liked rvallee's post in the thread Gordon Waddell, back pain, the subversion of the biopsychosocial model, and the UK government's development of a victim-blaming approach to disability.
I definitely agree. But no one can effectively and reliably do this. Even less so in the 5-10 minutes or so that the average medical...
Jun 1, 2024 at 8:24 PM -
CovidSpice liked forestglip's post in the thread 2024: Twitter campaign aimed at John Oliver and Jon Stewart.
Oh Todd Davenport actually chimed in for #JohnVsJonVsME: [MEDIA]
Jun 1, 2024 at 8:22 PM -
Trish liked Jonathan Edwards's post in the thread UK: New advocacy resource for people with ME in hospital.
This would be my main concern right from the outset. There is no point in having an information sheet that sounds right to patients but...
Jun 1, 2024 at 8:21 PM -
CovidSpice liked SNT Gatchaman's post in the thread 2024: Twitter campaign aimed at John Oliver and Jon Stewart.
Her husband posted a time-lapse of her day. https://fb.watch/sq40fCFYkz/
Jun 1, 2024 at 8:21 PM -
Trish liked Hutan's post in the thread UK: New advocacy resource for people with ME in hospital.
That's very useful context, thanks @Cinders66. I think though that we do need to worry about what sceptical doctors will think, because...
Jun 1, 2024 at 8:20 PM -
bobbler replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
and ripe in the bigoted to self language in an attempt to stay accepted. You might well have a point there. The difficult thing is she...
Jun 1, 2024 at 8:20 PM -
Yann04 liked Trish's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Fatigue is what I felt when well after a long hike, dancing all night or being up several times a night feeding a baby or caring for a...
Jun 1, 2024 at 8:20 PM -
Yann04 liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Your question wasn't aimed at me (sorry!), but ... illness. Sore throat and swollen neck glands, hypersensitive bladder, feeling...
Jun 1, 2024 at 8:20 PM -
Yann04 liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
What differentiates malaise from fatigue to you?
Jun 1, 2024 at 8:19 PM
