Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients....
Jun 12, 2024 at 10:47 PM -
Kitty liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
There is no excuse for such ridicule. But I can see why doctors would get fed up with patients claiming to have MTHFR mutations and...
Jun 12, 2024 at 10:47 PM -
Kitty liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line,...
Jun 12, 2024 at 10:46 PM -
Kitty liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
That would be a fruitful subject for an incisive and intrepid journalist. How can NHS Drs provide safe and ethical services to the...
Jun 12, 2024 at 10:46 PM -
Kitty liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 12, 2024 at 10:46 PM -
MrMagoo liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 12, 2024 at 10:46 PM -
rvallee liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
What then do they think are the problems? Society's belief that objectively measurable disorders are more real and worthy than other...
Jun 12, 2024 at 10:45 PM -
MrMagoo replied to the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 12, 2024 at 10:45 PM -
Kitty liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 12, 2024 at 10:45 PM -
Kitty liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Does it in some way avoid the ‘correlation issue’ of what is causing what given disability existed before the task —> correlation with...
Jun 12, 2024 at 10:44 PM
