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Activity stream for all registered members at Science for ME.

  1. Peter Trewhitt liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    It looks to me as if someone has twigged to the potentially very serious issue of Dr Kane being seen to be treating children without...

    Jun 13, 2024 at 10:30 AM
  2. Peter Trewhitt liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    Yes, it seems to have been amended for the better: Unfortunately, I don’t have a copy of the original article to compare so I’m...

    Jun 13, 2024 at 10:29 AM
  3. Peter Trewhitt liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    The article does a really good job of presenting how an ordinary family's life can be overturned by all of this, how intransigent...

    Jun 13, 2024 at 10:29 AM
  4. Wyva liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...

    Jun 13, 2024 at 10:29 AM
  5. Peter Trewhitt liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    or maybe she's just getting better.

    Jun 13, 2024 at 10:29 AM
  6. Peter Trewhitt liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

    Jun 13, 2024 at 10:28 AM
  7. Peter Trewhitt liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree. My concern is that the reference to untested treatments will make it only too easy for health professionals to say to...

    Jun 13, 2024 at 10:28 AM
  8. Wyva liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...

    Jun 13, 2024 at 10:28 AM
  9. Peter Trewhitt liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...

    Jun 13, 2024 at 10:28 AM
  10. Peter Trewhitt liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...

    Jun 13, 2024 at 10:28 AM
  11. Peter Trewhitt liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...

    Jun 13, 2024 at 10:27 AM
  12. Peter Trewhitt liked SNT Gatchaman's post in the thread Opinion Challenges and opportunities in long COVID research, 2024, Rebecca E. Hamlin and Catherine A. Blish.

    Challenges and opportunities in long COVID research Rebecca E. Hamlin; Catherine A. Blish Long COVID (LC) is a condition in which...

    Jun 13, 2024 at 10:26 AM
  13. Wyva liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...

    Jun 13, 2024 at 10:26 AM
  14. Peter Trewhitt liked John Mac's post in the thread Esther Crawley.

    A very, very wide spectrum

    Jun 13, 2024 at 10:26 AM
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