Recent Activity
Activity stream for all registered members at Science for ME.
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alktipping liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 12:00 AM -
NelliePledge liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 12, 2024 at 11:55 PM -
NelliePledge liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 12, 2024 at 11:53 PM -
RaviHVJ replied to the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 12, 2024 at 11:53 PM -
Starlight liked JohnTheJack's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I've tweeted Edzard Ernst hoping he may look at it as well.
Jun 12, 2024 at 11:50 PM -
Starlight liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I tagged Hannah Sharland (Canary Writer) asking her if she would be interested in covering this and sent her this thread. She said she...
Jun 12, 2024 at 11:50 PM -
Starlight liked Hoopoe's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Recovery stories on youtube especially in the context of someone like Raelan Agle are often advertising for commercial programs and the...
Jun 12, 2024 at 11:50 PM -
Starlight liked InitialConditions's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Monica Greco at Goldsmiths is a potential project lead. She has coauthored with Sharpe on BPS topics. It could be that she's supervising...
Jun 12, 2024 at 11:50 PM -
Starlight liked InitialConditions's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Raelan is in the states. What I assume has happened is someone has had an idea for this project and they've picked her channel because...
Jun 12, 2024 at 11:50 PM -
Starlight liked Lou B Lou's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
We know Recovery Norge was created to get round new consumer laws relating to alternative medicine, that testimonials would no longer be...
Jun 12, 2024 at 11:50 PM -
Starlight liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
For future reference, I have archived the main pages of the course Homepage: https://archive.md/Qhacm About Me (Lesson 1):...
Jun 12, 2024 at 11:49 PM -
Starlight liked Jonathan Edwards's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I have emailed a Goldsmith address but have no idea if I will get a response.
Jun 12, 2024 at 11:49 PM
