Recent Activity
Activity stream for all registered members at Science for ME.
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MrMagoo attached a file to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Care and support plans...
Jun 11, 2024 at 11:08 PM
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Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Once a year review in primary care is the NICE recommendation...
Jun 11, 2024 at 11:06 PM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If those are trained well, and not from some guideline eg put together by Clare Gerada, then it gets around clinics being able to claim...
Jun 11, 2024 at 11:06 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Once a year review in primary care is the NICE recommendation...
Jun 11, 2024 at 11:06 PM -
alktipping liked rvallee's post in the thread BMJ - Not "all in the mind", 2024, Richards.
Heeeh... not true. Not entirely. It's only true because psychosomatic medicine is not formally a specialty of its own, but for decades...
Jun 11, 2024 at 11:05 PM -
MrMagoo replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Once a year review in primary care is the NICE recommendation...
Jun 11, 2024 at 11:02 PM -
Laurie P liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 11, 2024 at 11:02 PM -
alktipping liked rvallee's post in the thread Functional dyspepsia and gastroparesis in tertiary care are interchangeable syndromes with common clinical and pathological features, 2021, Pasricha.
Oh, it doesn't imply it, it means exactly that. Although there are definitions of functional that mean something closer to what it...
Jun 11, 2024 at 11:02 PM -
MrMagoo liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If a public service [NHS England] is launched then it's reasonable to ask that appropriate monitoring is included --- in fact that's...
Jun 11, 2024 at 11:00 PM -
MrMagoo liked Peter Trewhitt's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The PACE study did do some longer term follow up. If my memory is correct wasn’t there a two year follow up, and didn’t they start the...
Jun 11, 2024 at 11:00 PM -
MrMagoo liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Definitely. It should be the only monitoring that counts. Particularly until we ever get past the phase where treatments and measures...
Jun 11, 2024 at 11:00 PM -
NelliePledge liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...
Jun 11, 2024 at 11:00 PM -
jaded liked Frith's post in the thread A question about mitochondria.
Last week I had an online “Initial Appointment Group Session” with my local ME clinic, slightly behind schedule as I ‘celebrate’ 37...
Jun 11, 2024 at 11:00 PM
