Recent Activity
Activity stream for all registered members at Science for ME.
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Wyva liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 3:40 PM -
Wyva liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 3:40 PM -
Kitty liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
That's very helpful.
Jun 12, 2024 at 3:39 PM -
Kitty liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Yep I should be able to do that.
Jun 12, 2024 at 3:39 PM -
Turtle liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 3:37 PM -
Turtle liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 3:37 PM -
Wyva liked Eleanor's post in the thread Sound sensitivity.
(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today....
Jun 12, 2024 at 3:31 PM -
bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Yes it would! I would hope the producers are aware of the guidance, but then again I can think of some ME clinics/physios who would...
Jun 12, 2024 at 3:29 PM