Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 12:08 PM -
bobbler liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
Well, yes, they would do, even if it is taking notice when a patient mentions a surprising improvement. But things are a bit more...
Jun 13, 2024 at 12:07 PM -
bobbler liked MelbME's post in the thread Open Medicine Foundation (OMF).
I think clinicians provide the first layer of evidence this is how trialling Rituximab and Ampligen came about. Then it comes down to a...
Jun 13, 2024 at 12:05 PM -
bobbler liked FMMM1's post in the thread Open Medicine Foundation (OMF).
I know I'm quoting selectively from your post. @Jonathan Edwards was part of the MRC group which was asked to identify research...
Jun 13, 2024 at 12:05 PM -
Trish liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might...
Jun 13, 2024 at 12:05 PM -
bobbler liked Eddie's post in the thread Open Medicine Foundation (OMF).
Well CBT and GET has been tested and shown not to work. If we had no data on these treatments at all I would be fine with a study being...
Jun 13, 2024 at 12:05 PM -
Trish liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I too couldn’t access files but video recording worked.
Jun 13, 2024 at 12:04 PM -
bobbler liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
So you are happy for the Lightning Process to be tried on everyone with ME/CFS based on reports of cure from Dr Garner's friends? You...
Jun 13, 2024 at 12:04 PM -
Dolphin replied to the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I too couldn’t access files but video recording worked.
Jun 13, 2024 at 12:03 PM -
Trish liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.
I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...
Jun 13, 2024 at 12:02 PM -
Trish liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...
Jun 13, 2024 at 12:01 PM
