Recent Activity
Activity stream for all registered members at Science for ME.
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Yann04 liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A couple of days ago on X there was a patient dx with M.E who posted information about CCI/AAI, MCAS, EDS that received many replies...
Jun 12, 2024 at 4:27 PM -
Yann04 liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 4:27 PM -
Yann04 liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 4:26 PM -
NelliePledge liked Simon M's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
I'm not sure how to interpret this estimate of there being 20-30k people out of work due to LC at July 2022. The study has many great...
Jun 12, 2024 at 4:10 PM -
NelliePledge liked Andy's post in the thread #MEAction UK: Questions to Ask Prospective MPs About ME/CFS.
Unfortunately I feel that providing a figure that misrepresents the likely scale is as unhelpful. Issues with the CDC survey from the...
Jun 12, 2024 at 4:07 PM -
Trish liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A couple of days ago on X there was a patient dx with M.E who posted information about CCI/AAI, MCAS, EDS that received many replies...
Jun 12, 2024 at 4:06 PM -
Trish liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 4:05 PM -
Wyva liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A couple of days ago on X there was a patient dx with M.E who posted information about CCI/AAI, MCAS, EDS that received many replies...
Jun 12, 2024 at 4:04 PM -
EndME liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
There is no excuse for such ridicule. But I can see why doctors would get fed up with patients claiming to have MTHFR mutations and...
Jun 12, 2024 at 4:03 PM -
EndME liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 12, 2024 at 4:03 PM -
forestglip liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A couple of days ago on X there was a patient dx with M.E who posted information about CCI/AAI, MCAS, EDS that received many replies...
Jun 12, 2024 at 4:02 PM -
NelliePledge liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...
Jun 12, 2024 at 4:00 PM -
NelliePledge liked rvallee's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
But, they don't have that. An "understandable illness model" is just nonsense, Scientology's "ghosts of dead aliens" is an...
Jun 12, 2024 at 4:00 PM -
NelliePledge liked Sean's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual...
Jun 12, 2024 at 3:59 PM
