Recent Activity
Activity stream for all registered members at Science for ME.
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Lou B Lou liked dave30th's post in the thread Esther Crawley.
really? If she qualified in 1991? I assumed mid-50s. Might have to correct my post although I said "presumably."
Jun 13, 2024 at 12:58 AM -
Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 13, 2024 at 12:56 AM -
Lou B Lou liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 12:55 AM -
Lou B Lou liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 12:55 AM -
Lou B Lou liked rvallee's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.
Pretty weak. I saw the CDC tweet about the NASEM report, which has loads of references to ME/CFS, PEM and the rest. Damn do they move...
Jun 13, 2024 at 12:54 AM -
Lou B Lou liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...
Jun 13, 2024 at 12:54 AM
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Lou B Lou liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 13, 2024 at 12:54 AM -
Lou B Lou liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 12:52 AM -
forestglip replied to the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 12:52 AM -
Lou B Lou liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 12:51 AM -
Lou B Lou liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 12:51 AM -
Lou B Lou liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 13, 2024 at 12:50 AM -
Lou B Lou liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Inability to recall the word rifle. "Where's my long shooty thing?"
Jun 13, 2024 at 12:49 AM -
Lou B Lou liked Yessica's post in the thread NIH study - where to start?.
The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 2) Posted on June 12, 2024 by Jeannette Burmeister This is Part 2...
Jun 13, 2024 at 12:49 AM -
Kitty replied to the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 12:49 AM
