Recent Activity
Activity stream for all registered members at Science for ME.
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wingate liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
'The only problem with that is that it is not fair to ask people to ask for help when nobody knows what would help. They just end up...
Jun 12, 2024 at 6:37 PM -
Robert 1973 liked Kitty's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
In addition to the ethical issues here, reports like this should always say very clearly that a proportion of pwLC (including children)...
Jun 12, 2024 at 6:33 PM -
Creekside replied to the thread A question about mitochondria.
They found an easy (for them) explanation, and of course don't want challenges to that. If they're crediting a source falsely, you...
Jun 12, 2024 at 6:29 PM -
Jonathan Edwards replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Yeah but nobody knows what. And if you seek hard enough you will find all sorts of made up stuff. At some point everyone involved has to...
Jun 12, 2024 at 6:28 PM -
Spartacus liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Admitting they don't understand M.E or that they haven't figured it out yet is not the same as dismissing the patient. I can respect that.
Jun 12, 2024 at 6:28 PM -
Spartacus liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The guy that first diagnosed me told me there was nothing he could to help me. Which is devastating but also absolutely fair imo. I...
Jun 12, 2024 at 6:28 PM -
NelliePledge liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The guy that first diagnosed me told me there was nothing he could to help me. Which is devastating but also absolutely fair imo. I...
Jun 12, 2024 at 6:27 PM -
Spartacus liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients....
Jun 12, 2024 at 6:27 PM -
Yann04 replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Hmmm. I know most of this community is of the opinion that the diagnoses such as MCAS and EDSh are not legitimate. But I’m wondering...
Jun 12, 2024 at 6:27 PM -
Spartacus liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 6:27 PM -
Spartacus liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line,...
Jun 12, 2024 at 6:26 PM -
Spartacus liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 12, 2024 at 6:25 PM -
NelliePledge liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Inability to recall the word rifle. "Where's my long shooty thing?"
Jun 12, 2024 at 6:25 PM -
Yann04 liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Admitting they don't understand M.E or that they haven't figured it out yet is not the same as dismissing the patient. I can respect that.
Jun 12, 2024 at 6:23 PM
