Recent Activity
Activity stream for all registered members at Science for ME.
-
LJord liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.
I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...
Jun 13, 2024 at 12:15 PM -
LJord liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...
Jun 13, 2024 at 12:14 PM -
Hutan liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
ME Research UK post on the 4 workshops: Research Workshops – attendance invitation...
Jun 13, 2024 at 12:13 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Clearly a 'trip' of the spellchecker.
Jun 13, 2024 at 12:13 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
It's a mixed bag. Caroline is very good at what she does but I am not sure that she has any particular experience with trials. The...
Jun 13, 2024 at 12:13 PM -
Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I would certainly agree that it is important to be able to measure how high you are after taking any drugs.
Jun 13, 2024 at 12:13 PM -
Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"Chair - Professor Harm van Marwijk, Professor in General Practice at Brighton and Sussex Medical School Speakers Sarah Gorst – COMET...
Jun 13, 2024 at 12:11 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
The real problem is that nobody has any clear idea what drugs to test, except naltrexone. Applications for funding for naltrexone trials...
Jun 13, 2024 at 12:10 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
They are part of the government research working party initiative. Monica Bolton has been organising these - she is interested in...
Jun 13, 2024 at 12:10 PM -
Hutan liked hotblack's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Looks interesting. Pleased to see Caroline Kingdon involved as she’s great. And involvement from a teaching hospital/medical school near...
Jun 13, 2024 at 12:10 PM -
Hutan liked Simon M's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I guess a lot depends on the number and quality of speakers, but this series of workshop seems like a big step forward and well thought...
Jun 13, 2024 at 12:10 PM -
Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"Please join us for this online workshop aiming to stimulate clinical trial research in ME/CFS. The speakers and discussions will look...
Jun 13, 2024 at 12:10 PM