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Hutan liked Peter Trewhitt's post in the thread Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al..

An ethical committee approving this is perhaps unsurprising, but, even though I was aware that Prof Crawley had a long-standing...

Hutan liked Sean's post in the thread Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al..

Indeed. How come that is not setting off alarm bells?

Hutan liked Trish's post in the thread Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al..

So both are forms of GET, just done differently. What a ridiculous study. The GET design looks like it's straight from the PACE GET...

horton6 liked EndME's post in the thread BBC: How Long Concussion could offer new insights into Long Covid.

In the short-term and possibly for the entire life of many of such people, that will possibly unfortunately be the case. But should one...

horton6 liked Yann04's post in the thread BBC: How Long Concussion could offer new insights into Long Covid.

Well there are a very specific set of symptoms and characteristics that nearly everyone with severe and very severe (and many people...

horton6 liked EndME's post in the thread BBC: How Long Concussion could offer new insights into Long Covid.

I believe there's a very strong reason to remain adamant to precisely not be doing this. ME/CFS, from what I've understood, has nothing...

bobbler liked Sean's post in the thread : TV casting call for people living with ME/CFS.

I believe the correct term is 'bang stick'.

bobbler liked alex3619's post in the thread : TV casting call for people living with ME/CFS.

That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...

bobbler liked alex3619's post in the thread : TV casting call for people living with ME/CFS.

At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...

bobbler liked Kitty's post in the thread : TV casting call for people living with ME/CFS.

:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...

bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.

I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger

forestglip posted a new thread.

Preprint Clinical and Diagnostic Features of Post-Acute COVID-19 Vaccination Syndrome (PACVS), 2024, Mundorf et al

Clinical and Diagnostic Features of Post-Acute COVID-19 Vaccination Syndrome (PACVS) Anna Katharina Mundorf, Amelie Semmler, Harald...

Forum: Long Covid research

SNT Gatchaman replied to the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.

Oonagh Cousins & the dangers of the Lightning Process

SNT Gatchaman posted a new thread.

Metabolic changes assessed by 1H MR spectroscopy in the corpus callosum of post-COVID patients, 2024, Pajuelo et al.

Metabolic changes assessed by 1H MR spectroscopy in the corpus callosum of post-COVID patients Pajuelo, Dita; Dezortova, Monika; Hajek,...

Forum: Long Covid research

forestglip liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.

Have heard from Cochrane CEO and replied. Will post tomorrow