Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If a public service [NHS England] is launched then it's reasonable to ask that appropriate monitoring is included --- in fact that's...
Jun 11, 2024 at 10:27 PM -
Lou B Lou liked Trish's post in the thread : TV casting call for people living with ME/CFS.
How bizarre. Can you make any more of what the email said public?
Jun 11, 2024 at 10:27 PM -
Lou B Lou liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Hello, Has anyone else received email regarding "TV casting call for people living with ME/CFS" ? To do with running and jogging and...
Jun 11, 2024 at 10:27 PM -
Kitty liked Peter Trewhitt's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The PACE study did do some longer term follow up. If my memory is correct wasn’t there a two year follow up, and didn’t they start the...
Jun 11, 2024 at 10:27 PM -
Kitty replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of...
Jun 11, 2024 at 10:27 PM -
Lou B Lou liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Definitely. It should be the only monitoring that counts. Particularly until we ever get past the phase where treatments and measures...
Jun 11, 2024 at 10:24 PM -
Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...
Jun 11, 2024 at 10:24 PM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Definitely. It should be the only monitoring that counts. Particularly until we ever get past the phase where treatments and measures...
Jun 11, 2024 at 10:12 PM -
Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...
Jun 11, 2024 at 10:11 PM -
Kitty liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The answer to any Parliamentary Question is simple. It was a project involving people with ME and funded by the ME Association. What...
Jun 11, 2024 at 10:11 PM -
Kitty liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Sounds like a good idea. I attend these meetings -...
Jun 11, 2024 at 10:11 PM -
Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Delivery plan!...
Jun 11, 2024 at 10:11 PM -
Amw66 liked rvallee's post in the thread BMJ - Not "all in the mind", 2024, Richards.
Heeeh... not true. Not entirely. It's only true because psychosomatic medicine is not formally a specialty of its own, but for decades...
Jun 11, 2024 at 10:07 PM -
Solstice liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 11, 2024 at 10:06 PM
