Recent Activity
Activity stream for all registered members at Science for ME.
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Turtle liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
Jun 12, 2024 at 11:51 AM -
Turtle liked Eddie's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic...
Jun 12, 2024 at 11:51 AM -
forestglip replied to the thread : TV casting call for people living with ME/CFS.
Should you maybe respect her wish to not publicize the presenter? If you're trying to keep an open dialogue with her, it won't help if...
Jun 12, 2024 at 11:49 AM -
Kitty replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours,...
Jun 12, 2024 at 11:48 AM -
forestglip liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 11:42 AM -
forestglip liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 11:42 AM -
forestglip liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 11:41 AM -
forestglip liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 11:41 AM -
forestglip liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Is it worth getting in touch with the presenter Richsrd Whitehead too just offering more info and being gently enlightening. He’s a...
Jun 12, 2024 at 11:41 AM -
forestglip liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Yes. I read it as maybe they had a template and someone got tasked with listing non/non-visible disabilities and because of the olde...
Jun 12, 2024 at 11:41 AM -
Yann04 liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 11:40 AM -
forestglip liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
There is no excuse for such ridicule. But I can see why doctors would get fed up with patients claiming to have MTHFR mutations and...
Jun 12, 2024 at 11:39 AM -
forestglip liked Andy's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
Abstract The COgnitive behavioural therapy versus standardised medical care for adults with Dissociative non-Epileptic Seizures...
Jun 12, 2024 at 11:38 AM -
forestglip liked Andy's post in the thread Closed UK: DecodeME updates, was recruitment thread..
Job description Summary: Job Title: Communications and Engagement Officer Reports to: Research Manager Salary: Up to £30,000 FTE...
Jun 12, 2024 at 11:37 AM