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Recent Activity

Activity stream for all registered members at Science for ME.

  1. SNT Gatchaman replied to the thread NIH study - where to start?.

    #noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...

    Jun 11, 2024 at 9:29 PM

  2. Wyva liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

    And that's the end of that possible source of stigma as far as the authors are concerned - when actually power differences and the...

    Jun 11, 2024 at 9:29 PM

  3. Wyva liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

    If only they put the same effort applied to acronyms to examining the evidence for the views they hold. Someone has been paying multiple...

    Jun 11, 2024 at 9:27 PM

  4. Hutan liked Mij's post in the thread ME/CFS services in the United Kingdom.

    I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]

    Jun 11, 2024 at 9:26 PM

  5. Hutan liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...

    Jun 11, 2024 at 9:26 PM

  6. bobbler replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    Definitely. It should be the only monitoring that counts. Particularly until we ever get past the phase where treatments and measures...

    Jun 11, 2024 at 9:26 PM

  7. bobbler liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...

    Jun 11, 2024 at 9:24 PM

  8. bobbler liked Andy's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

    Thread on ETUDE here, https://www.s4me.info/threads/etude-encompassing-training-in-functional-disorders-across-europe.16016/

    Jun 11, 2024 at 9:23 PM

  9. bobbler replied to the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    well they can spot vulnerable all right. And being in their hands to pass and even be able to get on with the rest of your career even...

    Jun 11, 2024 at 9:21 PM

  10. Peter Trewhitt liked Mij's post in the thread ME/CFS services in the United Kingdom.

    I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]

    Jun 11, 2024 at 9:18 PM

  11. Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...

    Jun 11, 2024 at 9:17 PM
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