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Aroa liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).

Hi @MelbME. Is saline beneficial? Standard physiology would suggest that the chances of saline infusions being more use than drinking a...

Aroa liked Yann04's post in the thread Open Medicine Foundation (OMF).

I would be very happy to have health insurance reimbursed Gazpacho prescriptions. :)

Aroa liked MelbME's post in the thread Open Medicine Foundation (OMF).

Not convincing data in ME yet we hope to provide the answers to this question by testing sham, saline, hypotonic saline and hypertonic...

Jaybee00 posted a new thread.

Lou Gehrig Day—ALS (USA) June 2

MLB commemorates 4th annual Lou Gehrig Day https://www.mlb.com/news/mlb-commemorates-4th-annual-lou-gehrig-day...

Forum: Advocacy Projects and Campaigns

Deanne NZ liked Amw66's post in the thread Maeve Boothby O'Neill - articles about her life, death and inquest.

[MEDIA] #InquestUpdate my daughter died from medical and local authority neglect of #VerySevereME Oct 2021. 2 weeks full hearings...

Deanne NZ liked SNT Gatchaman's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.

Two things caught my eye — And

Possibly James May liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).

Hi @MelbME. Is saline beneficial? Standard physiology would suggest that the chances of saline infusions being more use than drinking a...

alktipping liked NelliePledge's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.

I don’t see why malaise couldn’t be understood in the same way in English, probably because I knew the French I’ve never felt it to be...

alktipping liked NelliePledge's post in the thread Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.

Maybe they will finally start getting better checklists

alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I’m happy with the reports which visible spits out, and I can request further CSV symptom data extracts if I wish. I could do that and...

alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I’ve used free trackers like Bearable in the past to track symptoms. I often can’t speak so an app is preferable. There’s an issue...

alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

We certainly could, but it falls on deaf ears!

alktipping liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

In a sense maybe, but what we normally call research is investigation that reliably transfers to a general situation. And when it comes...

alktipping liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

To me, there might also be an opportunity to work on something sooner rather than later, iron out as many of the creases as we can, and...