Recent Activity
Activity stream for all registered members at Science for ME.
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Possibly James May liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
Hi @MelbME. Is saline beneficial? Standard physiology would suggest that the chances of saline infusions being more use than drinking a...
Jun 2, 2024 at 11:35 PM -
alktipping liked NelliePledge's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I don’t see why malaise couldn’t be understood in the same way in English, probably because I knew the French I’ve never felt it to be...
Jun 2, 2024 at 11:34 PM -
alktipping liked NelliePledge's post in the thread Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
Maybe they will finally start getting better checklists
Jun 2, 2024 at 11:34 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I’m happy with the reports which visible spits out, and I can request further CSV symptom data extracts if I wish. I could do that and...
Jun 2, 2024 at 11:33 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I’ve used free trackers like Bearable in the past to track symptoms. I often can’t speak so an app is preferable. There’s an issue...
Jun 2, 2024 at 11:33 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
We certainly could, but it falls on deaf ears!
Jun 2, 2024 at 11:33 PM -
alktipping liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
In a sense maybe, but what we normally call research is investigation that reliably transfers to a general situation. And when it comes...
Jun 2, 2024 at 11:32 PM -
alktipping liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To me, there might also be an opportunity to work on something sooner rather than later, iron out as many of the creases as we can, and...
Jun 2, 2024 at 11:32 PM -
alktipping liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I am right that Keith is a patient arent I? just suddenly had a moment of doubt but dont i remember that Wessely etc discounted his...
Jun 2, 2024 at 11:31 PM -
Yann04 liked alktipping's post in the thread Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
they really like to tag on anxiety and depression to everything don't they . those two words seem to be very dismissive of two very...
Jun 2, 2024 at 11:31 PM -
alktipping liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
They surely will have seen our letters and are free to read this thread.
Jun 2, 2024 at 11:31 PM -
alktipping liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Oh. Oh heck. Stupid question, but has the S4ME letter been sent to Keith and Russell as well as the trustees..? Keith seems to be...
Jun 2, 2024 at 11:31 PM -
HolyScrod liked horton6's post in the thread Open Medicine Foundation (OMF).
Similarly, I used a urinal bottle for a couple of years and can testify that, in PEM, the quantity of my output jumps massively (we're...
Jun 2, 2024 at 11:31 PM -
alktipping liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 2, 2024 at 11:30 PM -
oldtimer liked JemPD's post in the thread Animal research for ME.
I find the idea of animal models at this stage, to be grossly unethical and at best a waste of time. there is no such thing as an...
Jun 2, 2024 at 11:30 PM
