Recent Activity
Activity stream for all registered members at Science for ME.
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JellyBabyKid liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to...
Jun 12, 2024 at 6:09 AM -
JellyBabyKid liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Not necessarily PROM specifically - as those just measure delivery of something but something simple and more appropriate annually that...
Jun 12, 2024 at 6:07 AM -
JellyBabyKid liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I am finding the idea of discussing the pros and cons /potential catches (my biggest concern is understanding the power base behind GP...
Jun 12, 2024 at 6:07 AM -
JellyBabyKid liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care...
Jun 12, 2024 at 6:04 AM -
JellyBabyKid liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If those are trained well, and not from some guideline eg put together by Clare Gerada, then it gets around clinics being able to claim...
Jun 12, 2024 at 6:00 AM -
Wyva liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...
Jun 12, 2024 at 5:57 AM -
Wyva liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few...
Jun 12, 2024 at 5:56 AM -
bobbler liked Sean's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.
"An etude is a short, tricky tune that a musician plays mainly for practice or to demonstrate skill."
Jun 12, 2024 at 5:54 AM -
Sean replied to the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.
"An etude is a short, tricky tune that a musician plays mainly for practice or to demonstrate skill."
Jun 12, 2024 at 5:52 AM -
Sean liked rvallee's post in the thread Functional dyspepsia and gastroparesis in tertiary care are interchangeable syndromes with common clinical and pathological features, 2021, Pasricha.
Oh, it doesn't imply it, it means exactly that. Although there are definitions of functional that mean something closer to what it...
Jun 12, 2024 at 5:51 AM -
Sean liked NelliePledge's post in the thread Loss and Return of Ticklishness in Functional Neurological Disorder 2024 Coebergh, Edwards et al.
I’m definitely ok then :D:thumbup:
Jun 12, 2024 at 5:50 AM
