Recent Activity
Activity stream for all registered members at Science for ME.
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MrMagoo liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 1:15 PM -
Simon M liked Mij's post in the thread ME/CFS services in the United Kingdom.
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Jun 12, 2024 at 1:14 PM -
MrMagoo liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other...
Jun 12, 2024 at 1:13 PM -
MrMagoo liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If you wanted to push it and get really proactive then it could be used by better GPs to signpost help and when to think of it. The...
Jun 12, 2024 at 1:13 PM -
MrMagoo liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yep. And also if they took the opportunity to have this bit in then it might mean those who have difficult people at home at least have...
Jun 12, 2024 at 1:12 PM -
pooriepoor91 liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 1:12 PM -
MrMagoo liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 1:11 PM -
cfsandmore liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 12, 2024 at 1:11 PM -
Lou B Lou replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients....
Jun 12, 2024 at 1:00 PM -
Robert 1973 liked Andy's post in the thread Closed UK: DecodeME updates, was recruitment thread..
Job description Summary: Job Title: Communications and Engagement Officer Reports to: Research Manager Salary: Up to £30,000 FTE...
Jun 12, 2024 at 12:58 PM -
Robert 1973 liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
or maybe she's just getting better.
Jun 12, 2024 at 12:57 PM
