Recent Activity
Activity stream for all registered members at Science for ME.
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Evergreen liked Kitty's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours,...
Jun 12, 2024 at 12:39 PM -
Evergreen replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
Sounds wise. I wouldn’t be able to do anything for an hour, though, not even close, so even if I have something for a week my...
Jun 12, 2024 at 12:38 PM -
MelbME liked DMissa's post in the thread In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al.
ay, there’s the rub
Jun 12, 2024 at 12:29 PM -
Trish liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
or maybe she's just getting better.
Jun 12, 2024 at 12:24 PM -
forestglip replied to the thread : TV casting call for people living with ME/CFS.
I think you missed one in the sentence beginning "We’re making an exciting new sports series".
Jun 12, 2024 at 12:19 PM -
Joan Crawford liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 12:18 PM -
Joan Crawford liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 12:18 PM -
Joan Crawford liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 12:18 PM -
Joan Crawford replied to the thread : TV casting call for people living with ME/CFS.
I blanked out the presenters mentioned. Janet is I think a producer or similar.
Jun 12, 2024 at 12:18 PM -
forestglip liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
or maybe she's just getting better.
Jun 12, 2024 at 12:17 PM -
forestglip liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...
Jun 12, 2024 at 12:17 PM -
forestglip liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I agree. My concern is that the reference to untested treatments will make it only too easy for health professionals to say to...
Jun 12, 2024 at 12:17 PM -
forestglip liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 12:17 PM -
forestglip liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...
Jun 12, 2024 at 12:17 PM
