Recent Activity
Activity stream for all registered members at Science for ME.
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MelbME replied to the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
You would get much wilder variation in the groups if you did it that way and little chance of statistical significance. Though...
Jun 2, 2024 at 10:17 PM -
forestglip liked Yann04's post in the thread GPT for ME/CFS Questions.
is there a word for “woke” but with ME/CFS woke meaning being aware of things the mainstream aren’t because MEGPT is doing great love it...
Jun 2, 2024 at 10:16 PM -
SNT Gatchaman liked MelbME's post in the thread Open Medicine Foundation (OMF).
Not convincing data in ME yet we hope to provide the answers to this question by testing sham, saline, hypotonic saline and hypertonic...
Jun 2, 2024 at 10:16 PM -
Yann04 replied to the thread GPT for ME/CFS Questions.
is there a word for “woke” but with ME/CFS woke meaning being aware of things the mainstream aren’t because MEGPT is doing great love it...
Jun 2, 2024 at 10:16 PM -
Trish liked NelliePledge's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
In my opinion Cort always puts a positive gloss on everything he writes about.
Jun 2, 2024 at 10:16 PM -
Trish liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I’ve used free trackers like Bearable in the past to track symptoms. I often can’t speak so an app is preferable. There’s an issue...
Jun 2, 2024 at 10:15 PM -
Trish liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
We certainly could, but it falls on deaf ears!
Jun 2, 2024 at 10:15 PM -
Trish liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
In a sense maybe, but what we normally call research is investigation that reliably transfers to a general situation. And when it comes...
Jun 2, 2024 at 10:14 PM -
forestglip liked MelbME's post in the thread Open Medicine Foundation (OMF).
Not convincing data in ME yet we hope to provide the answers to this question by testing sham, saline, hypotonic saline and hypertonic...
Jun 2, 2024 at 10:13 PM -
forestglip replied to the thread GPT for ME/CFS Questions.
Done. Difference between regular ChatGPT and ME/GPT: "is me/cfs psychogenic?"
Jun 2, 2024 at 10:09 PM -
Jonathan Edwards replied to the thread UK: New advocacy resource for people with ME in hospital.
Isn't there a n FND society, probably run by Jon Stone, though? Sharpe has the support of the Royal College of Psychiatrists and even...
Jun 2, 2024 at 10:09 PM -
MrMagoo liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The monitoring should be possible, but what would you do with it? For asthma and diabetes we have well documented treatments that...
Jun 2, 2024 at 10:08 PM -
MrMagoo liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
People with other chronic conditions such as asthma and diabetes are self monitoring and recording data on apps which help both with the...
Jun 2, 2024 at 10:08 PM -
MrMagoo liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Crossposted with Adrian. I think Adrian's idea is worth exploring. It wouldn't necessarily produce a long readout, rather, if I...
Jun 2, 2024 at 10:08 PM -
MrMagoo liked Adrian's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
How about a summary of how someones symptoms change with activities written in a short paragraph and derived from data recorded at the...
Jun 2, 2024 at 10:07 PM
