Recent Activity
Activity stream for all registered members at Science for ME.
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Yann04 liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 11, 2024 at 10:01 PM -
RaviHVJ liked Hoopoe's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.
Yes it fills me with despair. Just look at this immensely stupid circular logic here: By definition, unexplained persistent symptoms...
Jun 11, 2024 at 10:00 PM -
forestglip liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 11, 2024 at 9:58 PM -
SNT Gatchaman replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 11, 2024 at 9:56 PM -
FMMM1 replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If a public service [NHS England] is launched then it's reasonable to ask that appropriate monitoring is included --- in fact that's...
Jun 11, 2024 at 9:52 PM -
Yann04 liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 11, 2024 at 9:52 PM -
Peter Trewhitt liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 11, 2024 at 9:50 PM -
Peter Trewhitt liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
[MEDIA] [MEDIA] Dr. Keagen's responses on X I find keeping up with the emerging research on long-covid a bit daunting, and I teach it....
Jun 11, 2024 at 9:49 PM -
Peter Trewhitt liked bobbler's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
yes they don't get what is really going on in that interaction. because it is a tilted communication technique and power balance they...
Jun 11, 2024 at 9:48 PM -
Trish liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 11, 2024 at 9:48 PM -
Trish replied to the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 11, 2024 at 9:47 PM -
Trish liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 11, 2024 at 9:47 PM -
Wyva liked SNT Gatchaman's post in the thread NIH study - where to start?.
#noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...
Jun 11, 2024 at 9:45 PM -
Peter Trewhitt replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The PACE study did do some longer term follow up. If my memory is correct wasn’t there a two year follow up, and didn’t they start the...
Jun 11, 2024 at 9:43 PM
