Recent Activity
Activity stream for all registered members at Science for ME.
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JemPD liked Jonathan Edwards's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
I absolutely agree with the first half of what is said. But it will be completely ignored because of the second half. We need to stick...
Jun 12, 2024 at 10:33 AM -
bobbler liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 10:33 AM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
There is no excuse for such ridicule. But I can see why doctors would get fed up with patients claiming to have MTHFR mutations and...
Jun 12, 2024 at 10:27 AM -
Peter Trewhitt liked Andy's post in the thread Closed UK: DecodeME updates, was recruitment thread..
Job description Summary: Job Title: Communications and Engagement Officer Reports to: Research Manager Salary: Up to £30,000 FTE...
Jun 12, 2024 at 10:26 AM -
bobbler liked Hoopoe's post in the thread Urine Metabolomics Exposes Anomalous Recovery after Maximal Exertion in Female ME/CFS Patients 2023, Glass, Hanson et al.
What kind of problem could be causing such drastic changes in a wide range of metabolites? Is there a body wide "rest, repair and...
Jun 12, 2024 at 10:26 AM -
bobbler liked SNT Gatchaman's post in the thread Urine Metabolomics Exposes Anomalous Recovery after Maximal Exertion in Female ME/CFS Patients 2023, Glass, Hanson et al.
On potential links to endothelial dysfunction — ETA: I've posted the referenced paper at Elevated levels of plasma [SDMA] and...
Jun 12, 2024 at 10:21 AM -
Jonathan Edwards replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
There is no excuse for such ridicule. But I can see why doctors would get fed up with patients claiming to have MTHFR mutations and...
Jun 12, 2024 at 10:21 AM -
Eddie liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 10:18 AM -
SNT Gatchaman liked Eddie's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic...
Jun 12, 2024 at 10:10 AM -
bobbler liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 9:56 AM -
bobbler liked Jonathan Edwards's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
I absolutely agree with the first half of what is said. But it will be completely ignored because of the second half. We need to stick...
Jun 12, 2024 at 9:51 AM -
SNT Gatchaman liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 9:44 AM -
bobbler liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 9:42 AM
