Recent Activity

Activity stream for all registered members at Science for ME.

  1. Peter Trewhitt liked alfons2235's post in the thread Combined Metabolic Activators Accelerates Recovery in Mild-to-Moderate COVID-19, Altay et al, 28 June 2021.

    RC controlled studies with administration of NAC are always avoided because no patent profit will be acquired. But a lot of earlier...

    Jun 12, 2024 at 11:12 AM
  2. Peter Trewhitt liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.

    Some conference abstracts from The 30th National Scientific Assembly of the Hungarian Psychological Society from 2023 (book of abstracts...

    Jun 12, 2024 at 11:12 AM
  3. Peter Trewhitt liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other...

    Jun 12, 2024 at 11:11 AM
  4. bobbler liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Thank you @andrewkq. I think I have to have a refined search to one person, the volume would be too large to ask for all communications...

    Jun 12, 2024 at 11:06 AM
  5. FMMM1 liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...

    Jun 12, 2024 at 11:05 AM
  6. Trish replied to the thread Poor sleep quality may trigger cognitive deficits after recovery from COVID-19, 2024, Carnes-Vendrell et al..

    It seems pointless to do such detailed cognitive testing but to rely on self reports for sleep quality.

    Jun 12, 2024 at 11:05 AM
  7. John Mac liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.

    Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...

    Jun 12, 2024 at 11:02 AM
  8. Missense liked Tia's post in the thread : TV casting call for people living with ME/CFS.

    My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...

    Jun 12, 2024 at 11:02 AM
  9. bobbler liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...

    Jun 12, 2024 at 11:02 AM
  10. Missense liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.

    Yes! She mentioned a website the rep uses and I found that brand, so I'm pretty sure that will be available to me. I had to print out...

    Jun 12, 2024 at 11:02 AM
  11. bobbler liked rvallee's post in the thread Loss and Return of Ticklishness in Functional Neurological Disorder 2024 Coebergh, Edwards et al.

    Truly focused on what's important here. OK. Sure. How would it make sense that it's localized? If it's supposed to be a central...

    Jun 12, 2024 at 11:00 AM
  12. Wyva replied to the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.

    Some conference abstracts from The 30th National Scientific Assembly of the Hungarian Psychological Society from 2023 (book of abstracts...

    Jun 12, 2024 at 10:59 AM
  13. Kitty liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.

    Yes! She mentioned a website the rep uses and I found that brand, so I'm pretty sure that will be available to me. I had to print out...

    Jun 12, 2024 at 10:57 AM
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