Recent Activity
Activity stream for all registered members at Science for ME.
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Robert 1973 liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
The article does a really good job of presenting how an ordinary family's life can be overturned by all of this, how intransigent...
Jun 12, 2024 at 3:03 PM -
Kitty replied to the thread : TV casting call for people living with ME/CFS.
It'd be nice to have some!
Jun 12, 2024 at 3:02 PM -
Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...
Jun 12, 2024 at 3:01 PM -
Kitty liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 12, 2024 at 3:01 PM -
Peter Trewhitt liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 3:00 PM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
The NICE guidance states exercise- physical activity should be overseen by ME/CFS specialist...
Jun 12, 2024 at 3:00 PM
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Peter Trewhitt liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 3:00 PM -
Kitty liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
All of the above. I think they'll have no trouble at all finding someone. Someone who is either very mildly affected (eg somewhat...
Jun 12, 2024 at 3:00 PM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
When I was mild I started jogging again. I also started cycling too. Never as far as I used to, never as regularly as I used to, it was...
Jun 12, 2024 at 3:00 PM -
Kitty liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
I think you missed one in the sentence beginning "We’re making an exciting new sports series".
Jun 12, 2024 at 3:00 PM -
Kitty liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I blanked out the presenters mentioned. Janet is I think a producer or similar.
Jun 12, 2024 at 3:00 PM -
Kitty liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
Should you maybe respect her wish to not publicize the presenter? If you're trying to keep a productive dialogue with her, it won't help...
Jun 12, 2024 at 3:00 PM -
Kitty liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 2:59 PM
