Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Peter Trewhitt's post in the thread Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al..
An ethical committee approving this is perhaps unsurprising, but, even though I was aware that Prof Crawley had a long-standing...
Jun 13, 2024 at 5:07 AM -
Hutan liked Sean's post in the thread Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al..
Indeed. How come that is not setting off alarm bells?
Jun 13, 2024 at 5:07 AM -
Hutan liked Trish's post in the thread Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al..
So both are forms of GET, just done differently. What a ridiculous study. The GET design looks like it's straight from the PACE GET...
Jun 13, 2024 at 5:07 AM -
horton6 liked EndME's post in the thread BBC: How Long Concussion could offer new insights into Long Covid.
In the short-term and possibly for the entire life of many of such people, that will possibly unfortunately be the case. But should one...
Jun 13, 2024 at 4:26 AM -
horton6 liked Yann04's post in the thread BBC: How Long Concussion could offer new insights into Long Covid.
Well there are a very specific set of symptoms and characteristics that nearly everyone with severe and very severe (and many people...
Jun 13, 2024 at 4:25 AM -
horton6 liked EndME's post in the thread BBC: How Long Concussion could offer new insights into Long Covid.
I believe there's a very strong reason to remain adamant to precisely not be doing this. ME/CFS, from what I've understood, has nothing...
Jun 13, 2024 at 4:21 AM -
bobbler liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 4:15 AM -
bobbler liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 4:15 AM -
bobbler liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 4:15 AM -
bobbler liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 4:14 AM -
bobbler liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 4:13 AM -
forestglip posted a new thread.
Preprint Clinical and Diagnostic Features of Post-Acute COVID-19 Vaccination Syndrome (PACVS), 2024, Mundorf et al
Clinical and Diagnostic Features of Post-Acute COVID-19 Vaccination Syndrome (PACVS) Anna Katharina Mundorf, Amelie Semmler, Harald...
Forum: Long Covid research
Jun 13, 2024 at 3:55 AM -
SNT Gatchaman replied to the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
Oonagh Cousins & the dangers of the Lightning Process
Jun 13, 2024 at 3:41 AM -
SNT Gatchaman posted a new thread.
Metabolic changes assessed by 1H MR spectroscopy in the corpus callosum of post-COVID patients, 2024, Pajuelo et al.
Metabolic changes assessed by 1H MR spectroscopy in the corpus callosum of post-COVID patients Pajuelo, Dita; Dezortova, Monika; Hajek,...
Forum: Long Covid research
Jun 13, 2024 at 3:38 AM -
forestglip liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 3:36 AM