Recent Activity
Activity stream for all registered members at Science for ME.
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NelliePledge liked Andy's post in the thread Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed [PPI]... 2024 Engelaar et al.
Full title: Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient...
Jun 13, 2024 at 11:24 AM -
Trish replied to the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
By email from the workshop organiser Monica Bolton: Dear attendee, Many thanks for attending the Clinical Trial Design in People...
Jun 13, 2024 at 11:21 AM -
Theresa liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...
Jun 13, 2024 at 11:14 AM -
Aroa liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 11:13 AM -
Trish liked Andy's post in the thread Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed [PPI]... 2024 Engelaar et al.
Full title: Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient...
Jun 13, 2024 at 11:13 AM -
Trish liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Just gonna provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]
Jun 13, 2024 at 11:11 AM
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NelliePledge liked SNT Gatchaman's post in the thread Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up FDG-PET study, 2024, Horowitz+.
Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up 18FFDG-PET study...
Jun 13, 2024 at 11:10 AM -
John Mac liked LJord's post in the thread Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al.
I attended an open house yesterday. This device is amazing. I’m also impressed at the attention to detail of the people developing...
Jun 13, 2024 at 11:06 AM -
Yann04 attached a file to the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Just gonna provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]
Jun 13, 2024 at 11:06 AM
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NelliePledge liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 13, 2024 at 11:05 AM