Recent Activity
Activity stream for all registered members at Science for ME.
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Robert 1973 replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
This is Jeanette Burmeister’s summary of part 2 of her blog: https://threadreaderapp.com/thread/1800987624619782625.html @dave30th Are...
Jun 13, 2024 at 8:40 AM -
Lou B Lou liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 8:40 AM -
Lou B Lou liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 8:40 AM -
Lou B Lou liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 8:40 AM -
Lou B Lou liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 8:40 AM -
Trish liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 8:39 AM -
livinglighter liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Yes! I'm glad that she has pulled up the usage of the following charts. ANd how they seemed to be presented as if they showed the data,...
Jun 13, 2024 at 8:39 AM
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livinglighter liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 8:37 AM -
Lou B Lou liked wingate's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
I've only just gotten through the intro of this episode but when he jokingly introduced Oonagh as an "anti-recovery activist" I lol....
Jun 13, 2024 at 8:37 AM -
Lou B Lou liked MSEsperanza's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Thank you to everyone working on dissecting the study. In skimming-mode only and most is way beyond me anyway but stumbled across a...
Jun 13, 2024 at 8:36 AM -
Lou B Lou liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I agree, when you roll in the lack of calibrating for disability (which is in Treadway's instructions, despite his reply), and the news...
Jun 13, 2024 at 8:36 AM -
Trish liked SNT Gatchaman's post in the thread Semi-automated Segmentation and Quantification of Perivascular Spaces at 7 Tesla in COVID-19, 2022, Langan et al.
I won't make a separate thread, but this paper shows that enlarged perivascular spaces are more often associated with arteries, in the...
Jun 13, 2024 at 8:35 AM
