Recent Activity
Activity stream for all registered members at Science for ME.
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Laurie P liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 1:12 AM -
Laurie P liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 1:12 AM -
JemPD liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 13, 2024 at 1:10 AM -
Lou B Lou liked Nightsong's post in the thread Esther Crawley.
I edited my post just about a minute before you replied, Trish, but I meant insofar as she's able to directly affect the lives of...
Jun 13, 2024 at 12:59 AM -
Lou B Lou liked Trish's post in the thread Esther Crawley.
Not necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For...
Jun 13, 2024 at 12:59 AM -
Lou B Lou liked Trish's post in the thread Esther Crawley.
I am not sure what it's rignt to say about this. It seems to me it's very likely that an early retirement may be on personal grounds...
Jun 13, 2024 at 12:58 AM -
Lou B Lou liked dave30th's post in the thread Esther Crawley.
really? If she qualified in 1991? I assumed mid-50s. Might have to correct my post although I said "presumably."
Jun 13, 2024 at 12:58 AM -
Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 13, 2024 at 12:56 AM -
Lou B Lou liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 12:55 AM -
Lou B Lou liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 12:55 AM -
Lou B Lou liked rvallee's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.
Pretty weak. I saw the CDC tweet about the NASEM report, which has loads of references to ME/CFS, PEM and the rest. Damn do they move...
Jun 13, 2024 at 12:54 AM -
Lou B Lou liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...
Jun 13, 2024 at 12:54 AM
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Lou B Lou liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 13, 2024 at 12:54 AM -
Lou B Lou liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 12:52 AM -
forestglip replied to the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 12:52 AM
