Recent Activity
Activity stream for all registered members at Science for ME.
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MeSci liked Simon M's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
Sorry the blog went down for a while yesterday (not because it was overwhelemed, as far as I know). It's great to see this response to...
May 9, 2024 at 1:35 PM -
MeSci liked Kitty's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
Thanks, @chillier, it's so cheering to know the work's being done by a member of S4ME as well—I'd no idea!
May 9, 2024 at 1:33 PM -
MeSci liked chillier's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
Yes good management of expectations, and as we see it a negative result is also an informative outcome. We deserve to know one way or...
May 9, 2024 at 1:33 PM -
MeSci liked chillier's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
It was a lot of fun talking with you @Simon M and quite an honour to be featured in your blog! Audrey and I have both been a big fan of...
May 9, 2024 at 1:31 PM -
Robert 1973 liked Jonathan Edwards's post in the thread A general thread on the PACE trial!.
This would presumably be at the stage of planning to set up a trial. The quotes are quite interesting in that they suggest that those...
May 9, 2024 at 1:29 PM -
MeSci liked Tia's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
@Simon M thank you so much for explaining this so clearly. It's exciting that this study is going ahead, the results will be useful...
May 9, 2024 at 1:28 PM -
MeSci liked Sasha's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
This is fascinating and promising-looking stuff and even I understood it! :thumbup: What worries me about the funding is if a...
May 9, 2024 at 1:28 PM -
MeSci liked Simon M's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
I'm glad it stuck! And being quoted on someone's fridge - years on - makes me very happy. Thank you.
May 9, 2024 at 1:27 PM -
Robert 1973 liked Jonathan Edwards's post in the thread A general thread on the PACE trial!.
It was clear from the beginning that as an open trial with subjective outcomes it was dead in the water, but my understanding is that...
May 9, 2024 at 1:25 PM -
Robert 1973 liked dave30th's post in the thread A general thread on the PACE trial!.
It was clear from the beginning that the outcomes differed from the protocol ones. Patients criticized that right away. The overlap in...
May 9, 2024 at 1:23 PM -
NelliePledge liked Turtle's post in the thread Mitodicure GmbH applies for 3 patents for ME/CFS drugs.
Dear @Perrier I really got what you were writing, having 33 years of lived experience myself. Frustration about ; more research is...
May 9, 2024 at 1:19 PM -
NelliePledge liked Simon M's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
Sorry the blog went down for a while yesterday (not because it was overwhelemed, as far as I know). It's great to see this response to...
May 9, 2024 at 1:18 PM -
NelliePledge liked Kitty's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
Thanks, @chillier, it's so cheering to know the work's being done by a member of S4ME as well—I'd no idea!
May 9, 2024 at 1:17 PM -
NelliePledge liked chillier's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
It was a lot of fun talking with you @Simon M and quite an honour to be featured in your blog! Audrey and I have both been a big fan of...
May 9, 2024 at 1:17 PM -
Turtle replied to the thread Mitodicure GmbH applies for 3 patents for ME/CFS drugs.
Dear @Perrier I really got what you were writing, having 33 years of lived experience myself. Frustration about ; more research is...
May 9, 2024 at 1:13 PM
