Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
The real problem is that nobody has any clear idea what drugs to test, except naltrexone. Applications for funding for naltrexone trials...
Jun 13, 2024 at 12:10 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
They are part of the government research working party initiative. Monica Bolton has been organising these - she is interested in...
Jun 13, 2024 at 12:10 PM -
Hutan liked hotblack's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Looks interesting. Pleased to see Caroline Kingdon involved as she’s great. And involvement from a teaching hospital/medical school near...
Jun 13, 2024 at 12:10 PM -
Hutan liked Simon M's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I guess a lot depends on the number and quality of speakers, but this series of workshop seems like a big step forward and well thought...
Jun 13, 2024 at 12:10 PM -
Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"Please join us for this online workshop aiming to stimulate clinical trial research in ME/CFS. The speakers and discussions will look...
Jun 13, 2024 at 12:10 PM -
bobbler liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 12:08 PM -
bobbler liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
Well, yes, they would do, even if it is taking notice when a patient mentions a surprising improvement. But things are a bit more...
Jun 13, 2024 at 12:07 PM -
bobbler liked MelbME's post in the thread Open Medicine Foundation (OMF).
I think clinicians provide the first layer of evidence this is how trialling Rituximab and Ampligen came about. Then it comes down to a...
Jun 13, 2024 at 12:05 PM -
bobbler liked FMMM1's post in the thread Open Medicine Foundation (OMF).
I know I'm quoting selectively from your post. @Jonathan Edwards was part of the MRC group which was asked to identify research...
Jun 13, 2024 at 12:05 PM -
Trish liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might...
Jun 13, 2024 at 12:05 PM -
bobbler liked Eddie's post in the thread Open Medicine Foundation (OMF).
Well CBT and GET has been tested and shown not to work. If we had no data on these treatments at all I would be fine with a study being...
Jun 13, 2024 at 12:05 PM -
Trish liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I too couldn’t access files but video recording worked.
Jun 13, 2024 at 12:04 PM
